Now that I have your attention- relax!
Today I went into Peter Mac to have a minor procedure- I had a PICC Line Insertion. What is a PICC line? It involves XRAYS and Ultrasounds to find a direct vein line into your arm so that you can have chemotherapy without the fuss of lots of injections to get a line in. It is done under local anasthetic and was not too painful.It is more sore right now actually! I have to have it checked every week and dressed again to avoid the possibility of infection. I am pleased we went ahead with this.
The next bit of news.......I am going back in to hospital tomorrow and after seeing the Sarcoma Doctors at the Soft Tissue Sarcoma clinic, I will be admitted into Peter Mac for an overnight stay. Yes, I am OK...
They have just decided to bring my new Chemotherapy regime forward by a week- I have lots of crazy symptoms and appear to be getting worse.... thus the decision. The new chemotherapy is called Yondelis, which is used in Europe to treat soft tissue sarcoma/LMS.
My even bigger bit of news.... after much consultation with family and loved ones, it has been decided that I will take medical leave from work after the up and coming school holiday break is over. So from the 3rd week of July, I will take 10 weeks of medical leave so that I can rest, spend quality time with family, and give this 3rd treatment the best chance I can. Pease keep the prayers and visits coming.
Finally, I have OK'd the idea of a Fundraiser for Team Georgia, which will also include fundraising for the NLMS Foundation. If you are wanting to be involved you are most welcome, please contact me. It will be held in Melbourne on Sunday 15 July in Eltam at 3pm. Special thanks to the super-sisters for their work on this.
Love Your Life
Georgia
Tuesday 26 June 2012
Friday 15 June 2012
Down but not out
I am deeply disappointed in my latest results post CT scan.
The truth is I have had a miracle year where from July 2011 for at least 7 months I was blessed with a Progression Free result until March 2012.
The results from the March to May CT scan are abissmal. They could not be any worse.The tumours have been completely unresponsive to the GEMTAX chemotherapy. They have been growing exponentially and at a dangerously fast pace.My abdomen is now full of lumps and bumps and pressure on my lymph nodes is creating some restriction with my mobility-give me back my legs!!!!!!!!
There is no fix for my led legs. It may not improve at this rate. I am thinking about getting a walking aid- I have no pride-whatever helps I will do. My body is shrinking but my abdomen is swollen.
I have been taken off the chemo as it is deemed to not be working..... Another treatment is being considered, and with approval, may begin early July.
Every treatment I am on has a chance of working. The first one worked, the second one did not. The third one may again give me Progression Free time. If it does- we shall give thanks. If it does not, you do the maths.....
It has been a time of grieving. It is now a time to look ahead with hope.
My hope comes from a higher place. Do not be surprised. I am deeply a woman of faith and have always been. My meditation is always based on God's love. I will trust with all of my heart and I will not lean on my own understanding.
Let love abound. Let the peace of God that passes all understanding be with us.
Georgia
The truth is I have had a miracle year where from July 2011 for at least 7 months I was blessed with a Progression Free result until March 2012.
The results from the March to May CT scan are abissmal. They could not be any worse.The tumours have been completely unresponsive to the GEMTAX chemotherapy. They have been growing exponentially and at a dangerously fast pace.My abdomen is now full of lumps and bumps and pressure on my lymph nodes is creating some restriction with my mobility-give me back my legs!!!!!!!!
There is no fix for my led legs. It may not improve at this rate. I am thinking about getting a walking aid- I have no pride-whatever helps I will do. My body is shrinking but my abdomen is swollen.
I have been taken off the chemo as it is deemed to not be working..... Another treatment is being considered, and with approval, may begin early July.
Every treatment I am on has a chance of working. The first one worked, the second one did not. The third one may again give me Progression Free time. If it does- we shall give thanks. If it does not, you do the maths.....
It has been a time of grieving. It is now a time to look ahead with hope.
My hope comes from a higher place. Do not be surprised. I am deeply a woman of faith and have always been. My meditation is always based on God's love. I will trust with all of my heart and I will not lean on my own understanding.
Let love abound. Let the peace of God that passes all understanding be with us.
Georgia
Sunday 10 June 2012
One Year Since Diagnosis-Slay the Dragon!
OK. Honesty time.
I can't feel my hands and feet. My legs feel like led when I try to walk. Until two days ago I have hardly managed a meal for two weeks. My stomach has been in turmoil since Day 8 of the cycle and has only calmed down now- finally......It is now Day 20- meant to be my best days before chemo starts again on Day 1 Cycle 3 - Wed 13-6-12!
This Cycle has been completely unexpectedly difficult. It is not meant to be so hard this early in the therapy. I just want an explanation. I know I have been battling a chest infection which may be putiing extra pressure on my body. I also know that I have had extremely low blood pressure during the past 3 weeks. It may be this combination that has got me so beat!
Ofcourse I did have the CT scan 3 days ago. I will get the verdict on Wednesday. Have the tumours continued to grow- is chemo to continue- will I need to be put into hospital for serious attention- am I doing briliantly and unexpectedly well? It always makes me feel vulnerable, I just have to wait and see and be hopeful and have faith and have love in and around me.
It is so hard but it is worth the struggle and worth the effort. I will never give up until I know it will be OK in the end.
So, It's been a hell-of-a-year! Swear words- insert here if you want to !@#$%^&*()
Raise your glass and give thanks to God- I am still standing, still singing, still alive!
Love Your Life,
Georgia
I can't feel my hands and feet. My legs feel like led when I try to walk. Until two days ago I have hardly managed a meal for two weeks. My stomach has been in turmoil since Day 8 of the cycle and has only calmed down now- finally......It is now Day 20- meant to be my best days before chemo starts again on Day 1 Cycle 3 - Wed 13-6-12!
This Cycle has been completely unexpectedly difficult. It is not meant to be so hard this early in the therapy. I just want an explanation. I know I have been battling a chest infection which may be putiing extra pressure on my body. I also know that I have had extremely low blood pressure during the past 3 weeks. It may be this combination that has got me so beat!
Ofcourse I did have the CT scan 3 days ago. I will get the verdict on Wednesday. Have the tumours continued to grow- is chemo to continue- will I need to be put into hospital for serious attention- am I doing briliantly and unexpectedly well? It always makes me feel vulnerable, I just have to wait and see and be hopeful and have faith and have love in and around me.
It is so hard but it is worth the struggle and worth the effort. I will never give up until I know it will be OK in the end.
So, It's been a hell-of-a-year! Swear words- insert here if you want to !@#$%^&*()
Raise your glass and give thanks to God- I am still standing, still singing, still alive!
Love Your Life,
Georgia
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