Monday 27 February 2012

Minor setback, with a positive result & Rare Disease Day 28 Feb

Hi all,
Over the last 3 days I  have been extremely ill with a stomach virus of some sort. I ended up at the Austin Hospital on Sunday Morning 26 Feb as I was unable to keep anything in my system.

I was treated for extremely low blood pressure and rehydrated. The Doctors wanted me to stay in hospital so I stayed in overnight. I was also able to see one of my Peter Mac Doctors who happened to be at the Austin Hospital Oncology Ward while I was in Emergency. I complied with all advice, saw an Oncologist the next day and had my results confirmed as unlikely to be related to my cancer.My bloods have come up as being very stable, with my white blood cell count in the normal range.

I also obtained information via the Doctors that my CT scan based at Peter Mac 23 Feb on my neck region got the all clear as well! This is an added bonus to me being in hospital over the weekend.

I was allowed to go home under the proviso that I continue to take time off work this week. This is frustrating beyond belief, but I will stay put till I can actually eat something....At the moment I am managing to keep some rehydration up, but don't feel ready to eat as yet. I am feeling weak, but pleased to be home rather than in hospital.

Also, tomorrow is Rare Disease Day. If you are interested, I will include a link to a website that I have contributed my information about my Sarcoma condition to.
http://www.rarediseaseday.org/

Take care,
Georgia

Tuesday 14 February 2012

Great News Today

We went in to Peter Mac today to see the specialist. We received confirmation of my stable status based on the CT scan in January. Hooray!

I discussed some side-effects of chemo and some symptoms I am still experiencing.

As a precaution, I have been scheduled  for an extra scan next week - Thursday 23 Feb to check some issues I am having around my Neck/Shoulder region. As a norm, this area is not usually checked out as my diagnosis is based around Uterine Leiomyosarcoma. The focus of scans tends to concentrate on the abdominal/lung area.

If all is well, I won't be called in the following week for a consultation. I will then wait for my next scheduled every 8 week CT scan. This is scheduled for Tuesday 20 March. I will definitely return again to Peter Mac on 28 March for a consultation about the Abdominal/Lung CT scan.

I feel very well-looked after. This is a very intensive checking schedule that has been put in place as a follow-up to the trial I participated in last year. If in any way my illness progresses,  I will be advised and supported by Sarcoma specialists and provided with the best care available in Australia.

So for now, I remain treatment-free. So for now, no side-effects of medication to worry about. So for now, I continue to work full-time as an Assistant Principal in a Secondary School. Who would have thought this possible? It is amazing and I am not taking it for granted, I can assure you!

My short-term goal is to:
 increase my fitness and wellness and build my capacity and strength, keep my mind and spirit well and full of faith, hope and love,
My medium goal is to:
be able to work effectively throughout 2012,
My long-term goal is to:
survive beyond my 50th Year!

Love Your Life,
Georgia