Thursday 29 September 2011

Cycle 4 Underway

Hi All,
I am sure that news about the AFL Grandfinal (Go 'Pies!) is much more interesting, but to catch you all up with my news:

Cycle 4 Chemo is now over - I was in all day as usual on Wednesday, and spent 3 hours at Peter Mac Hospital both on Thursday and Friday. Apart from being a liitle unwell Friday morning, it all went smoothly. Thanks to my hero Sarah who has absolutely magic and my number 1 support since Day 1, I was driven in comfort and well looked after for each session this week. To make up for feeling unwell this morning, we had a great Japanese meal on Smith St Collingwood (go the 'Pies), on the way home!

I have bloods to come as usual on Wednesday morning week 2,  then in week 3 I have my next major CT scan on the Friday. This one is important as it may signal which direction my health is going towards.
Three options:
1. Tumour growth or new tumours will mean being taken off the trial and put on other meds.
2. Progression Free Comparison to the last CT scan - good news for me, and will mean staying on the trial (ends in November) with a prospect of knowing what new treatments might be going into next year.
3. Progression Free and reduction in size and/or number of tumours - great celebrations will occur, and staying on the trial!

I won't know these results until I see my specialist on Wednesday 19 October. I'll keep you all informed of the findings as they come through.

Cheers,
Georgia

Wednesday 14 September 2011

Sisters - a little tribute

Hi All,
CYCLE 3
I am travelling well, but with some obligatory side-effects ofcourse...
I tend to lose my taste-buds in week 1 which is immensely frustrating. I spend a fair bit of time resting around day 4 to day 10. The effects of the injection mean that my bones are extra active in producing white blood cells, so I get qiuite achy in the pelvis, chest and limbs. I also get some osophageal and bowel problems associated with the anti-nausea meds.

By the way, my blood tests show I am travelling very well, based on yesterday's results.

Throughout all this, my beautiful sisters are always checking in with me, offering to do the most mundane tasks to lighten our load. They are gorgeous people, so here they are from Cycle 3 chemo days:


At front entrance of Peter Mac cancer centre: 3 sisters

Aren't they cute!


Treasure your family,
Georgia

Saturday 10 September 2011

Making Good Progress- Cycle 3

There is good reason to celebrate, with a good result coming through from the CT scan from last week. The tumours have not continued to grow at their rapid rate! In fact, there has been no comparative growth in number of tumours nor in the size of tumours since the last CT scan which was two weeks prior to Cycle 1 chemo beginning.

We are very happy about this. Ofcourse, I always hope for more than this incredible news and I am determined to make more impact on the DRAGON LMS!

I have just completed my 3rd round of chemotherapy and so am nearly half-way through the Picasso III trial. It is still too early to discuss the future with my Sarcoma specialist. We are just hoping to remain Progression Free throughout the trial. This term is the one used for Leiomyosarcoma patients, instead of the term:Cure! I know the one that I prefer...

I am being careful to not be exposed to much illness, thus the staying away from work, but am thinking more about the potential of when I could return. I know it is early days for this but am going a bit trippy with all the socialising and Foxtel viewing.....

I want to especially acknowlege my lovely sisters who have been so loyally by my side a great deal of the time and have also been a great support to us at home. You guys are amazing!

Hope you can celebrate my good news with me at some stage soon,
Love your life,
Georgia