An update for everyone:
A successful visit to Peter Mac Hospital: On Friday I finally got a PICC line back in- this time on my right arm. Apparently it was difficult to find a vein big enough , so another doctor was called in to do the task. I then had bloods taken, which needs to occur before chemotherapy takes place.
I was then put into Ward 9 and given a bed straight away! What progress!
Then, the blood analysis machine broke down, which meant a long wait before I got the go-ahead to have chemo. 7pm came round and everyone was nervous, my chenmo is worth thousands of dollars and with a restricted shelf-life, and blood results not back, we still went ahead at 7:30pm, and started the 24 hour process.
Eventually, results came through and my electrolytes needed some attention, but all other factors were in the safe zone.
On Saturday morning, I woke up with sunshine streaming onto my face as I watched balloons floating across the city. It was an incredible sight. I had a good day in hospital and was glad to eventually leave at 7:30pm Saturday evening. So Cycle 2 of Yondelis (trabectidin) is now done.
The next big event is the CT Scan- we all know how much I look forward to these. The worst part is the drink which makes my stomach ache given the tiny amounts I put into it these days.
Realistically, we know that the last two scans have been negative and that this is a big deal. It is one scan at a time, so this could have huge implications:
If I need to state the obvious:
-it could be good news- chemo is helping, your tumours are stable lets continue to be on Yondelis: yey!
-it could be not good news:- chemo is not helping, your tumours are growing lets stop this chemo
-what are the other possibilities? I don't know if I have many other options, but I will ask and I will let you all know.
How am I? I am now able to walk a little without assistance. When I go out, I tend to rely on the walker and most of the time, people drive me around. I am "able to drive" according to the doctors, but have so much fluid in my legs it would probably take a bit of confidence to get it to happen. I am still in good spirits and am hopeful that I can continue to improve physically from the position I am now in. Again, I am on medical leave from work- this came at exactly the right time, and am able to focus on being as well as I can be.
Today, Sarah and I took a trip to Geelong and visited Rachel's puppies; 6 gorgeous border collies - too cute!
Love Your Life,
Georgia
I seriously can't wait to see you!!! Just a few weeks until the cousins collide;)
ReplyDeleteHi G, have the doctors suggested any diruetics, natural or otherwise to clear your lymph to give you some relief? Perhaps lymphatic drainage massage may help xx
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