A little legless, but not so bad....

Hi folks,

I think I should check in with everyone. Yesterday, (Wednesday) I went in for my usual Day 8 Chemo. I had bloods done, the had my hair trimmed to number 1 at the hospital , as it is all falling out again anyway- wait for the new look!

Then went up to Chemotherapy Day Unit at 12pm. We waited a while and then a nurse came up and set she needed to take a blood sample to do an antibody match for a blood transfusion. I couldn't believe it as I was feeling fine. Apparently my heamoglobin (HB) had dropped since the previous week, and so my Dr had ordered the blood for me as a precaution due to the timing of the chemo. Usually, if HB is low, they delay chemo, but mine was not at dangerous levels: "89" is low, but not dangerous.

Chemo took until 5pm and then the transfusion of 1 litre (1 bag) took 2 hours. It was a long day- Sarah is a trooper and doing the hard yards helping me on Chemo days. She is the best!

So, I took Thursday off, but the weird thing is I felt worse as the day went on, my legs lost power- I call it feeling legless! So, I will take Friday off work as well, drink lots of water to get my blood pressure up a bit!

I took the Day 9 injection again today, so will wait for the possible aching in my bones in a day or so.....remember- this is a good thing!

I believe all is going very well. I am not on Pain medication anymore- this may be because of many reasons, 1 possibility is that the tumours are being attacked! We shall see.

I have a series of appointments coming up soon, but no chemo now till the new cycle- 3 starts on 13 June. Yey!

I have a CT scan to check the tumours on 8 June. On 13 June, I will see the Sarcoma Fellow and discuss the results.I am expecting to continue with Chemo and Cycle 3. We did not do a baseline just before this chemo treatment began. I know the tumours were growing fairly rapidly over March to May, so if things are neutral that will be a good result.

On 11 July, I am having my next Echocardiogram to check if my heart is on the improve or not. I will see the cardiologist on 13 July to get the verdict.

By the way, this time round I am being careful with Dexamethasone- no crazy highs to speak of....

Just one last thing: To Lucy who I believe was beautifully cared for and had a rich and loving life- a beautiful soul - may you rest in peace!

Love Your Life,
Georgia