If this was going to be about learning life lessons to let go and not be in control, I think I am on the right path.
I am not in control of my treatment and my LMS status. It is challenging my sense of balance and positivity. And yet, I am still well, and living my life without too much discomfort and restriction.
The call came from Peter Mac 12 April; please come in for more tests. There was an irregularity reported in my heart test yesterday.
What is it?
My heart rate is actually OK, but the problem has to do with Conduction- I believe this relates to electrical activity in the heart: "The electrical conduction system that controls the heart rate: This system generates electrical impulses and conducts them throughout the muscle of the heart, stimulating the heart to contract and pump blood."
The issue may have arisen due to last year's chemotherapy.
The medication is on hold now until we know one way or the other if my heart can handle these new meds. The Sarcoma Specialist needs more information from the cardiologist before we can proceed further with treatment. I will have to go in to Peter Mac next week to have this issue checked out. Then go back in again to meet with the cardiologist to receive feedback about the testing. So, first week back at work after a two-week break, but I have to go in for two days to hospital!!!!!
I cannot believe it, it is so frustrating. Could this mean Chemo is the next treatment after all? If so, Ifosfamide or Gem/Tax will possibly be back on the table.
In a follow-up phone call to the hospital 13 April , I have locked in two appointments next week: Wed 18 April at 10.30am for an Echocardiogram, and 20 April at 9am to meet with the Cardiologist to go through the results.
On the phone, the Sarcoma doctor was still keen about the possibility of me qualifying for this medication- it is seen clearly as the best option for me right now. There aren't a lot of other options that could be effective in helping me to be Progression -Free!
We shall see.....
Is it true?: Cancer is just a word, not a sentence..........
Love your life,
Georgia
grrr... beyond frustrating.. sending some prayers up for ya.
ReplyDeleteAAARRRGGGHHH!!!! How frustrating for you xx
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